Sunday, January 25, 2009

Parkinson Disease

Well, I just shot a bunch of pics of new jewelry to put on Etsy and when I went into Photoshop to crop them they were ALL blurry. Every single one was unusable. So now I'm pissed off and that makes me shake even worse. This sucks! Even as I type this I have to backspace as much as I type because of tapping the letters too many times.

I was just diagnosed about six months ago with Young Onset Parkinsonian Disease and am taking medication for it and it really helps. I know this cause I took myself off it for a while...long enough to find out I don't ever want to do that again...about three days. In that time I went from a functioning, capable person to someone who could barely get out of bed or off the couch. My feet shuffled as I walked, barely coming off the floor, with the speed of a baby snail. I hurt all over from muscles cramping. I couldn't get a damn thing done and that's what pissed me off the most.

Definition of Parkinson from WebMD:
Parkinson's disease affects the way you move. It happens when there is a problem with certain nerve cells in the brain.
Normally, these nerve cells make an important chemical called dopamine. Dopamine sends signals to the part of your brain that controls movement. It lets your muscles move smoothly and do what you want them to do. When you have Parkinson’s, these nerve cells break down. Then you no longer have enough dopamine, and you have trouble moving the way you want to.
Parkinson’s is progressive, which means it gets worse over time. But usually this happens slowly, over a period of many years. And there are good treatments that can help you live a full life.

No one knows what causes this and how fast it will progress...

Until I started having symptoms I didn't know much about this disease. Oh I knew Michael J. Fox had it and Muhammed Ali got it from taking too many punches to the head, and that it made them shake uncontrollably, but that's about it. Apparently I'm not the only one. Parkinson's research doesn't get nearly the funding other diseases get, even with all Michael J. Fox does to enlighten the powers that be.
Anyway....I really don't know where I'm going with all's just frustrating to be so out of control and to know it's only going to get worse, but not knowing how long it will take. Knowing for a fact that you will eventually become a huge burden on your family and not being able to stop it or do anything to make up for it or ease their burden is depressing and makes all the symptoms worse.
Oh well....

1 comment:

  1. I'm sorry about your Parkinsons.. health problems are the toughest thing to deal with.. Ya wanna do more than you are able.. and the not knowing from day to day how you're gonna feel is the pits. I wanna thank you for sharing your talents with us!